Daily Kos: The Story of Julian (goodbye to autism)

The Story of Julian (goodbye to autism)

bylanellici

First, the Before picture

Here is my son Julian, at four years old: he couldn’t play with toys; he scowled most of the time; he had explosive, violent rages; had little or no recognition of danger; panicked easily; aggressive; little to no tolerance for changes of any sort; intolerant of light, loud noises, anyone touching him; constantly sick with asthma, ear infections, virus after virus after virus.

Julian would compulsively rub his head all over me and want to put his hands and head under my shirt. He made strange noises a lot of the time, something like the sound dolphins make. His outbursts of rage seemed most of the time to come out of nowhere.

How I found the way out, after the fold. It gets worse before it gets better.

He never played with his little sister, but rather could not tolerate her presence at all, and we couldn’t leave the two of them alone because Julian could unpredictably become aggressive. He never expressed empathy for people or animals. He was not developing any capacity to play by himself. At times he seemed not to be able to think clearly, although he was very intelligent. No pretend play whatsoever. At school he was self-contained; he didn’t explode, but made no friends and did not become actively involved in what was happening. He watched. He never waved hello — he didn’t seem to understand the point of greetings at all.

Our home life was, as you might guess, a disaster. My husband and I were deeply stressed out and my little daughter was routinely very frightened. We pretty much stayed home all the time because crowds made Julian so upset, but home was no place of calm no matter how much we worked at making it that way. On his third birthday I invited three kids and their moms over, people he had spent a lot of time with, and his reaction, when the first child arrived with a smile and a present, was to scream, “I HATE OTHER PEOPLE!” and run upstairs to his room and refuse to come back.

It’s also true that Julian could be extremely interesting to talk to. He invented his own terminologies, he asked questions such as “Who invented language?” while fighting the carseat buckle, he could draw pictures from perspectives that were absolutely his own, unique and strange and lovely.

At that point I was a nearly total believer in mainstream medicine. He got every vaccination on time, he went to every well-visit, I gave him fluoride drops because the pediatrician told me to, round after round of antibiotics because the pediatrician told me to. I followed directions. But I had a child who was a wreck, and sick nearly all the time. When I suggested that something might be wrong, she reassured me that he was fine (a story many many parents of autistic kids can tell). Julian was my first child, my mother died before he was one, my other relatives thought he behaved badly because I was a crummy parent — so I relied on the pediatrician’s observations.

But then Julian fell off a cliff. He spiraled into a meltdown that wouldn’t quit. Hours and hours of crying every day, violent, vicious hissing talk about how he wanted to chop me up into little pieces and put me in the trashcan, how he wanted to kill people, how he wanted to die. He was FOUR……..

via Daily Kos: The Story of Julian (goodbye to autism).

9 Questions That Stump Every Pro-Vaccine Advocate and Their Claims

Prescription placebos used in research and pra...

Prescription placebos used in research and practice (Photo credit: Wikipedia)

9 Questions That Stump Every

Pro-Vaccine Advocate and Their Claims

Lire en Français

Since the flu pandemic was declared, there have been several so-called “vaccine experts” coming out of the wood work attempting to justify the effectiveness of vaccines. All of them parrot the same ridiculous historical and pseudoscientific perspectives of vaccinations which are easily squelched with the following 9 questions.

Claim: The study of vaccines, their historical record of achievements, effectiveness, safety and mechanism in humans are well understood and proven in scientific and medical circles.

Fact: The claim is completely false.

1. What to ask: Could you please provide one double-blind, placebo-controlled study that can prove the safety and effectiveness of vaccines?

2. What to ask: Could you please provide scientific evidence on ANY study which can confirm the long-term safety and effectiveness of vaccines?

3. What to ask: Could you please provide scientific evidence which can prove that disease reduction in any part of the world, at any point in history was attributable to inoculation of populations?

4. What to ask: Could you please explain how the safety and mechanism of vaccines in the human body are scientifically proven if their pharmacokinetics (the study of bodily absorption, distribution, metabolism and excretion of ingredients) are never examined

or analyzed in any vaccine study?

Read more…..

via 9 Questions That Stump Every Pro-Vaccine Advocate and Their Claims.

Autism Study Reveals No Genetic Associations

Autism spectrum disorders (ASD) include everything from the relatively mild Asperger syndrome (characterized by more mild social and language impairments) to full-fledged autism (characterized by severe social and communicative handicaps, limited interests, and repetitive behaviors).  ASD is relatively common, and in the United States it is estimated that one out of every 54 boys is affected (the frequency in girls is considerably lower, averaging one affected girl out of every 252). Although genetics certainly plays a role in these conditions, exactly how is not fully understood, and this newest study, led by Richard Anney (Trinity College of Dublin) and Bernie Devlin (University of Pittsburgh School of Medicine), is the next a long line of scientific inquiries to this point.

Their study, known as the Autism Genome Project (AGP), was conducted in two stages. The first stage of consisted of a genome-wide association study using genetic data from 1400 families affected by autism; the second stage checked the associations discovered in the first stage using the genetic data from an additional 1301 ASD-affected families and included another new genome-wide association study which combined the study subjects from both stages.

When all the analyses were said and done, no SNPs (common genetic variations) were significantly associated with ASD. Furthermore, when some of the SNPs that had been identified in the first study as possibly associated with ASD were tested in the second-stage families, the associations failed to hold up.  This lack of common SNPs associated with ASD is both disappointing and enlightening.

Knowledge of what is not true, paradoxically, is knowledge of what is true.  For instance, if I tell you that my pet Tyger is not a dog, you are one step closer to knowing Tyger’s a cat.  Most of science progresses through “not trues” — the failed hypotheses that bring us closer to real understanding. A perfect example of this mode of scientific progress is this recent genetic study.  Their lack of findings was quite a finding.

The fact that no SNPs were associated with ASD in such a large study suggests that the effect of any one common SNP is quite small. Even when all the SNPs were used together to predict whether a study subject would have ASD, the model explained less than 1% of differences in risk for the condition.

The fact that these common SNPs have little power to predict ASD does not mean that genetics is unimportant.  Twin studies suggest that ASD is at least moderately heritable, suggesting that genetics does play a role.  This current study’s lack of findings supports the idea that common genetic variations may play a smaller role than rare mutations or copy number variation (the number of copies of a given gene) in ASD risk. Thus, the lack of ASD associations today has, hopefully, brought us closer to tomorrow’s discoveries.

via No Genetic Associations Found in Autism GWAS | The Spittoon.

Avoiding Autism: What to do when you’re pregnant.

We need to know how to help our autistic children.  Just as important is to avoid it in the first place.  Our future depends on our children and we cannot survive if we continue to allow our children to be so severely affected.

How can we avoid something if we don’t know what is causing it?  We ask the question, “What causes autism?”

It’s a loaded topic.  Filled with politics on all sides.

I hear the debate.  Over diagnosis, vaccines, environment, viruses, Lyme, strep, antibiotics, heavy metals or of course my favorite, evolution.  The theories are never-ending.

The more potential for profit, the more skewed the results of the research.

Our children are being lost in the debate.  The longer this discussion lasts, the more time we take to debate the issue, the more children fade.  Time is of the essence here and we as parents are the first defense our children have against this debilitating event.

We alone are the only wall to shield the next generation from imminent disaster.  We are alone to sort out the best thing to do. We are confused.  Frankly, nobody knows what causes autism.

The players?

  • Genetics: meaning there isn’t much we can do about it right?  Our kids are just born this way, or is something affecting the genes?  If so what?
  • Over diagnosis:  You won’t see many parents of autistic children accepting this one.  Politics might sell it to people who do not know Autism, but the rest of us aren’t buying what they are selling.
  • Vaccines:  Probably a contributor, but if it alone were the cause then we would not have unvaccinated Autistic biomed responders ( like my son).
  • Environment:  while our environment is terribly toxic there are certainly times in our history when the environment was easily as toxic (especially around the middle of the industrial age).

There are more, but I will skip to the point since I am not likely to name them all anyway.  I see desperate parents regularly asking how to avoid autism?

My Opinion:

Autism is iatrogenic.  Meaning: caused by doctors.  Not as individuals necessarily, but certainly as part of the larger system.  I am sure people are tired of hearing rantings over big pharma or discussions on the latest trend of diagnosing people with their symptoms (like my cousin, who took her dd to the doctor after she fainted for no clear reason, only to leave the office with a diagnosis of syncope…?).   I could likely write 20 blog entries complaining about our medical system, lol, but you all know me.  I am too much of a fixer to waste that much time on complaining (I reserve most of my ranting for my lovely family).

So what is the solution?

If your pregnant or thinking of getting pregnant I have a few tips I would recommend.

  1. Do not mess with detoxification unless you have about 18 months afterward.
  2. Get back to basics.  Eat good food not pesticide laden, GMO pseudofood.  Real food the way our grandmothers and our great-grandmothers used to cook.  Boil thee bones to make thy soup and other such nutrient dense real food techniques. Avoid artificial ick and additives, MSG, fake sugars, trans fats and hydrogenated oils, high fructose corn syrup, etc…
  3. Take a decent multi-vitamin to make up for what is lacking in our food.
  4. Fish oil is a must when pregnant: High quality fish oil higher in DHA than EPA (1500 mg DHA / 750 mg EPA is good)
  5. Control the toxic load as much as possible.  Don’t choose now to remodel your house.  Don’t use CFLs.  Stay clear of chlorine bleach, and other chemicals, fluoride, fabric softeners, aluminum and non stick cookware, etc…
  6. Above all stay away from Doctors unless it is absolutely necessary.  DO NOT Vaccinate!  DO NOT take Rx Meds!

Doctors treat disease they do not bestow health.  Do not use medication that is my motto. Doctors can run tests, check your health, and clue you in to a possible disease process. They are however, most beneficial when you are well-informed and do your homework.  and if you find a doctor who is annoyed by your desire to be part of the process, RUN!!!

We use vitamins and herbs at the first sign of illness and we seldom need to go to the doc.  I think the old adage, “An apple a day to keep the doctor away,” was right in one regard.

Keeping the doctor away is of utmost benefit to your health!

Looking for Autism: the saga continues

We are back in school this year as a first grader and I gave the teacher a couple of weeks to settle in before I went in to chat with her.  Since we aren’t homeschooling any more I really need this feedback from someone who deals with him all day long.  Not to mention she sees him with all his other peers where I would expect his deficits to stand out more.

So I asked her how she felt he was doing?  She just looked at me with a puzzled expression and said he is doing great.

ME:  “Ok, so what I mean is on a scale of 1-10 how do you think he is doing socially?”

TEACHER: “He is doing very well he plays with the other kids and enjoys recess and when he chooses to so an activity on his own like read a book he is fine if another student joins him and he returns to the group just like any other student would.”

(Obviously she is not understanding I want to know about his deficits, so I try again)

ME:  “That is great.  But if you had to assign a number to the kids.  and 1 is say this child doesn’t belong in a regular classroom and 10 is perfectly neuro-typical indistinguishable from his peers., and fits in the class exactly as he should  Where would my son fit?”

TEACHER:  “Well, I would say he is maybe a little more mature than the other children in the classroom.  We will know more after they finish the testing on Tuesday, but they might talk to about the possibility of moving him up a grade.”

(Now I am the one with the puzzled look on my face)

ME:  “Well, we did hold him back a year to give him the best chance at catching up socially.”

(but I am thick headed and I came here for a deficit darn it and I am determined to get one)

ME AGAIN:  “I know my son has a little bit of an odd word choice and some precocious language.  I am not really looking for something I need to change, but just something to watch to see how he is progressing.  Can you come up with any kind of behavior or thing that he does that kind of makes him stand out from the other kids a bit.  Something that perhaps could be watched and measured for progress?”

TEACHER:  “Well, I don’t know, I wouldn’t exactly call it a deficit.  In fact it is endearing, but when he gets very happy and excited he kind of jumps up in his chair and squeals with joy.  It is just a moment and it makes the rest of the class happy and laugh and it is contagious.  I really wouldn’t want to see it go away, but is that what you are looking for?”

We finished our conversation with some small talk and she said she would watch him a little closer and if she happened to notice anything she’d make a note of it for me.  I thanked her and assured her that she needn’t go out of her way, but I would be very appreciative of any feedback she had good or bad.

So the question remains.  Where oh where did this elusive Autism gene go?  I mean my son didn’t regress he was born Autistic.  For all intents and purposes he still should be.  Could he really have been cured of Autism.  I mean sure, we have always hoped.  We did biomed and chelated (still chelate) in the hopes that it would get rid of the Autism.  But did I ever really believe it?

No, I am still waiting for it to leap out and bite us in the butt.

I think I have a tiny glimpse into the world of PTSD.  I am still holding my breath and I am still watching and analyzing, and picking up on every possible deficit.  I do this silently to myself (I would not do it in front of my child) because I can’t really imagine that we may see a day without supplements and weekly rounds.

I been eating, drinking, sleeping , and dreaming Autism for so many years.  It is hard to imagine a life without it.  and I have been secretly afraid to actually think it would ever really be gone.

Maybe I can actually let myself hope?

 

Trying to find the Autism: Theory of Mind

We have had our son tested every few years to see how he is doing/progressing.

I did let the testers know that he had a diagnosis of Autism, but I did not give them the actual tests to look at as I wanted their unbiased assessment on how he was doing at the time of the test.

The past summer (2011) we had him tested by the school district.  They ran all the typical Autism tests, they tested his sensory issues, they even tested his cognitive abilities this time as he was able to read and could get more thorough testing than in previous years.  They then decided to test his speech as well.  We had a total of 5 appointments to complete the variety of tests.

About a week or so after the last test we had the results appointment.  They found that his mispronunciation of the letter “L” was not age appropriate and he qualified for 1 hour per week of speech to address this.

Huh?

Ok and………?   Nothing.  No autism.  No Pdd.  No Aspergers.  Not on the spectrum.  No part time in the Special needs classroom.  No aid or shadow.  Nothing.

There are a lot of parents who claim their child is recovered and I do not make that claim as I can still see a few things that make him look slightly different from his peers (some slight oddness in the way his arms move when he runs, some precocious language, and a sporadically his tone is, well, odd).  So recovered? No, but is there any Autism?

Well another parents mentioned the Sally and Ann test for theory of mind, so I did this with him, fully expecting him to fail.  He passed.  He passed both what is she thinking and what does he think she is thinking.  Wow!

I decided to go a bit further this past week and really see if I could find the Autism.

I searched online and found a variety of links for theory of mind sample tests and questions.  I read him all the questions I could find. In all he took 5 tests and he passed he missed all of 2 questions.  He got questions correct that were labeled as memory (of course this is to be expected as it has always been his strong suit), TOM1, TOM2, and TOM4.

Now these were just internet sample test given by his Mom, but I tend to be hard.  I did not give him any clues or repeat options when he got one wrong.  I was really looking for some measure to go by to watch these last skills come online.  See we started by using the ATEC (his first score was132), when he scored 0 on that we went to the child brain pdd test.  he started in the 70’s on that test.  When that went to 0 I had nothing else to use, this is what prompted me to look for these TOM questions.  Now I am just at a loss.

I can see the Autism in his slight oddness of posture and word/phrase selection, but I can’t seem to get a handle on anything else.

Could that really be all we have left to address………………………?  I suppose only time will tell.

http://www.staff.ncl.ac.uk/daniel.nettle/liddlenettle.pdf

http://www.iidc.indiana.edu/?pageId=424

http://www.psychologytoday.com/blog/aspergers-diary/200805/empathy-mindblindness-and-theory-mind

http://psych.wisc.edu/lang/pdf/Gernsbacher_autistic_modules.pdf

http://www.staff.ncl.ac.uk/daniel.nettle/liddlenettle.pdf

Reduced levels of mercury in first baby haircuts of autistic children

Reported rates of autism have increased sharply in the United States and the United Kingdom. One possible factor underlying these increases is increased exposure to mercury through thimerosal-containing vaccines, but vaccine exposures need to be evaluated in the context of cumulative exposures during gestation and early infancy.

Differential rates of postnatal mercury elimination may explain why similar gestational and infant exposures produce variable neurological effects. First baby haircut samples were obtained from 94 children diagnosed with autism using Diagnostic and Statistical Manual of Mental Disorders, 4th edition (DSM IV) criteria and 45 age- and gender-matched controls. Information on diet, dental amalgam fillings, vaccine history, Rho D immunoglobulin administration, and autism symptom severity was collected through a maternal survey questionnaire and clinical observation.

Hair mercury levels in the autistic group were 0.47 ppm versus 3.63 ppm in controls, a significant difference. The mothers in the autistic group had significantly higher levels of mercury exposure through Rho D immunoglobulin injections and amalgam fillings than control mothers. Within the autistic group, hair mercury levels varied significantly across mildly, moderately, and severely autistic children, with mean group levels of 0.79, 0.46, and 0.21 ppm, respectively.

Hair mercury levels among controls were significantly correlated with the number of the mothers’ amalgam fillings and their fish consumption as well as exposure to mercury through childhood vaccines, correlations that were absent in the autistic group.

Hair excretion patterns among autistic infants were significantly reduced relative to control.

These data cast doubt on the efficacy of traditional hair analysis as a measure of total mercury exposure in a subset of the population.In light of the biological plausibility of mercury’s role in neurodevelopmental disorders, the present study provides further insight into one possible mechanism by which early mercury exposures could increase the risk of autism.

via Reduced levels of mercury in first bab… [Int J Toxicol. 2003 Jul-Aug] – PubMed – NCBI.

Ancestry of pink disease (caused by mercury) identified as a risk factor for autism spectrum disorders.

Pink disease (infantile acrodynia) was especially prevalent in the first half of the 20th century. Primarily attributed to exposure to mercury (Hg) commonly found in teething powders, the condition was developed by approximately 1 in 500 exposed children.

The differential risk factor was identified as an idiosyncratic sensitivity to Hg. Autism spectrum disorders (ASD) have also been postulated to be produced by Hg. Analogous to the pink disease experience, Hg exposure is widespread yet only a fraction of exposed children develop an ASD, suggesting sensitivity to Hg may also be present in children with an ASD. The objective of this study was to test the hypothesis that individuals with a known hypersensitivity to Hg (pink disease survivors) may be more likely to have descendants with an ASD.

Five hundred and twenty-two participants who had previously been diagnosed with pink disease completed a survey on the health outcomes of their descendants. The prevalence rates of ASD and a variety of other clinical conditions diagnosed in childhood (attention deficit hyperactivity disorder, epilepsy, Fragile X syndrome, and Down syndrome) were compared to well-established general population prevalence rates.

The results showed the prevalence rate of ASD among the grandchildren of pink disease survivors (1 in 22) to be significantly higher than the comparable general population prevalence rate (1 in 160).

The results support the hypothesis that Hg sensitivity may be a heritable/genetic risk factor for ASD.

via Ancestry of pink disease (infanti… [J Toxicol Environ Health A. 2011] – PubMed – NCBI.

Did Acetaminophen Provoke the Autism Epidemic?

tylenol bottle closeup

http://www.altmedrev.com/publications/14/4/364.pdf

I was invited to view a webinar on a possible connection between Autism and Acetaminophen some months ago.  When I was first told about the next great claim of a definitive cause for Autism, I was skeptical.  I had listened to so many debates on causation and autism.  Honestly, after awhile, the obvious politics involved becomes very tiresome.

I voiced my skepticism, but as this mother proceeded to describe some of the accusations against Acetaminophen (Tylenol), I started to listen more closely.  That is when it hit me.  Unlike all the other causation theories, this could actually explain my child’s Autism and his remarkable improvement through chelation.

You see, my son did not match the typical case histories of othAcetaminophen and Autismer Autistic children.  In fact, I almost failed to pursue biomedical treatments because he did not have a typical story.

My child did not regress.  He never developed normally.  After his diagnosis it became apparent that he was born with Autism.

My child did not have any health problems or frequent ear infections.  In fact the only ear infection and subsequent round of antibiotics he had ever had was at 2.2 years of age, well after his Autism was apparent.

My child was never vaccinated.  I did not receive any vaccines or Rhogam while pregnant.

This was my 5th child.  If his Autism was solely due to my toxic body burden one would expect my previous children to be more affected.

We did not move.  My 3rd child and 4th child were both born and raised in the exact same apartment building as my 5th child.  The environment hadn’t changed.

I really was at a loss and none of the typical biomed explanations quite fit our experience.  Still biomed advocates were proposing using natural safe approaches, like diet modification along with vitamins and other supplements.  These weren’t things that could damage my child, so I really had no reason not to at least give it a go.

We did the GFCF diet and saw improvement.  We did yeast treatments and gut supports, and saw improvement.  He improved on zinc.  He improved on B6.  He improved with almost every intervention we tried.

Then we found AC chelation and he improved to point that most would consider him recovered.  He is in a typical school with typical peers with no supports.  He has friends and has been invited to parties.  In fact, at the end of this year they tested him for the gifted program and determined that he was academically gifted and will start going to an enrichment school one day a week because his typical classroom isn’t quite academically challenging enough.  He is flourishing.  (He does still have some precocious speech and slightly odd gestures but no sign  of Autism.  He was diagnosed with low functioning Autism at age 2.5).

With that kind of drastic improvement with chelation protocol, it was apparent he was metal toxic.  But how?  By now the how didn’t matter much to me.  We left the how question alone to dangle in the wind as we had found the solution, so it didn’t seem important to figure out exactly how the problem started or what the cause could have been.

Never the less the question always dangled, it never totally disappeared from our minds.

Insert the Acetaminophen theory.

You know what was different about my 5th child’s med history?  I was over due and very uncomfortable during my last trimester.  It was so bad that I could not even get two full hours of sleep per night.  I was miserable and exhausted.  My midwife was concerned about whether I would have the energy to mount a proper labor and delivery.  I asked her if there was anything safe I could take while pregnant to help me sleep.  ( I just knew her answer would be no).  She said yes and came back with an Rx for Tylenol 3 with codeine.

I told her I thought it was over kill, “I am uncomfortable but I am not in pain.  I just need some sleep.”

She said that it didn’t cross the placental wall and that although I didn’t need the pain relief, it was the only thing they could give me that was safe for my baby.

I took Tylenol 3 almost every night for 2 weeks.

Quote from article:

Acetaminophen taken during pregnancy may provoke autism present at birth…

Finally, a possible explanation for what we had experienced.  The Tylenol I took may have interfered with his ability to detox environmental toxins as well as impaired his brain function and immune system.  The toxins his body built up could be responsible for the rest.  Is this truth or theory?

At this point it is only theory.  But it is the first theory that had a chance of explaining what we saw, and the research is convincing.  It is solid enough that I would never give Tylenol to another child.  I would recommend all children and pregnant mothers avoid Tylenol and other acetaminophen containing products.  Until more research is done it only makes sense to be cautious.

Mercury Toxicity: What to do about it.

In the book Amalgam Illness by Andrew Hall Cutler the author has an excellent explanation on why ALA chelation is the only safe, effective means to remove mercury from the Brain and CNS.

In short: metalic mercury, organic mercury, methylmercury and ethylmercury are all processes by the body and can then be transformed into inorganic mercury.

When this happens in the brain and CNS the inorganic mercury is trapped.  The body has no mechanism for getting it out past the Blood Brain Barrier.

Alpha Lipoic Acid is the only safe and effective chelator that we currently have available to us which can cross the blood brain barrier and remove inorganic mercury from the brain.

Mercury has the potential to cause many of the same behavioral symptoms seen in children with Autsim.  If mercury is the root cause for the behavior and physical symptoms the person is suffering from, then appropriate, safe chelation has the potential to recover the person from the ailments they are experiencing.

In my opinion since ALA is a wonderful Antioxident when not in the presance of heavy metals and has the potential to offer relief if the symptoms are caused by metals it only makes sense to give it a whirl.  See Safe Chelation for details.

ATSDR – Public Health Statement: Mercury.

At the above link you will find information on the following:

1.1 What is mercury?

1.2 What happens to mercury when it enters the environment?

1.3 How might I be exposed to mercury?

1.4 How can mercury enter and leave my body?

1.5 How can mercury affect my health?

1.6 How can mercury affect children?

1.7 How can families reduce the risk of exposure to mercury?

1.8 Is there a medical test to determine whether I have been exposed to mercury?

1.9 What recommendations has the federal government made to protect human health?

References

Where can I get more information?

Autism Idioism: “Some kids just grow out of it.”

Subject: Quinn, a boy with autism, and the lin...

Yes I did just make up a word.  Guilty.

But what would you call a commonly expressed statement made about Autism as if it is fact when it is purely fiction and often rude to boot?

Idiom: A form of expression natural to a language, person, or group of people

Ism: A distinctive practice, system, or philosophy, typically a political ideology.

Idiot: A stupid person.

I am sure you all have a host of unintelligible statements people have made about your child or Autism in general.  I am usually pretty patient with the ignorance but sometimes it just crosses the line.

I was talking to a parent about my sons amazing progress with chelation.  I was explaining that regardless of the politics and double blind peer-reviewed studies doctors need in order to “treat” our children, we as parents can decide if something is helpful based on observation.  That based on the amazing benefits we have seen with chelation it is quite apparent that he had heavy metal poisoning.

That is when another parent felt the need to join the conversation just to tell us about her friend’s child who just grew out if his Autism.  She said that is probably what was happening to my son.  Unbelievable.  What is even more unbelievable is that I have actually had two unrelated people at two separate times make this same suggestion, lol.

Another Autism idioism we hear all the time is that the quiet, quirky kid we sat next to in school was probably Autistic, but they weren’t as good at diagnosing it back then.  (It was actually my son’s pediatrician who said this to me).  One problem with that theory, I do not recall that quirky kid ever flipping out, screaming, throwing things, then hitting, scratching, and biting any teacher who tired to contain him just because someone moved his eraser.  Thanks to chelation we no longer see these total meltdowns, but they were so much a part of our daily lives I can not imagine someone suggesting my son could have ever gone undiagnosed.  No, that quirky kid did not look anything like my son.

Do any of you have Autism Idioisms you’d like to share?

 

 

I have to fix this, me and only me

Like I said in another post,  I found his autism by searching the web for a friend.  So now what?

Well the search was on, the hours and days of reading and research.  It was consuming me.  I had to find the answer.  Of course my dh was in complete denial.  Like most fathers he didn’t want to hear it.  (He is completely on board now, but this was in the beginning).

I couldn’t eat, barely slept.  I was running on adrenaline.  I was making appointments trying to get him into ABA therapy (getting on waiting lists),  searching biomed sites, joining yahoo groups.

It is so hard to understand biomed from disconnected posts on yahoo.  I went to the library, checked out books etc…

I didn’t even give myself time to let it sink in.  As usual I went straight from: we have a problem…. to… find the solution.  There was no time to mourn for the lost future.  There was no time to breathe.

And I was alone.  There was no doctor to help.  I had no friends who had been there before.  No family members to tell me to slow down (I do not live in the same state as my family they are many miles from us).  Just the weight of my child’s future on my shoulders.  All I felt was urgency, I wouldn’t even let the fear in.  My baby had fallen off the edge of a cliff and I had to find a way to catch him before he hit the ground.  I was a robot running on coffee and determination.  And the stress was about to devour me.

(to be continued)

 

Related to:

https://throughthepuzzle.com/2012/04/20/hello-world/

CEHC develops list of ten chemicals that contribute to autism, learning disabilities | The Autism News

Reports of autism cases per 1,000 children gre...

Reports of autism cases per 1,000 children. (Photo credit: Wikipedia)

Current science recognizes the fallacy in the theory of macro-evolution.  You will not find it touted as fact in academic circles the way you do in public primary schools and even in the media.

Similarly science is finding the connection between Autism Spectrum Disorders  (and other developmental delays) and environmental assaults like heavy metals.  The debate connecting heavy metal toxicity and Autism is ongoing, not because of lack of research, but because of politics.

Children’s Environmental Health Center (CEHC) at Mount Sinai School of Medicine developed the list of ten chemicals found in consumer products that are suspected to contribute to autism and learning disabilities to guide a research strategy to discover potentially preventable environmental causes. The top ten chemicals are:

1.Lead

2.Methylmercury

3.PCBs

4.Organophosphate pesticides

5.Organochlorine pesticides

6.Endocrine disruptors

7.Automotive exhaust

8.Polycyclic aromatic hydrocarbons

9.Brominated flame retardants

10.Perfluorinated compounds

via CEHC develops list of ten chemicals that contribute to autism, learning disabilities | The Autism News.

Battelle Scientists Identify Potential Early Biomarker for Autism Spectrum Disorder

synthesis equation for porphyrins

synthesis equation for porphyrins (Photo credit: Wikipedia)

Battelle Scientists Identify Potential Early Biomarker for Autism Spectrum Disorder.

What is most interesting to me about this article is that porphyrins are also used to diagnose heavy metal toxicity.

Urinary porphyrins testing is a medically recognized way to test for mercury.  There are specific porphyrinsthat spill for mercuryand specific ones that spill for lead.

  • Precoproporphyrin = mercury toxicity. You will not have any levels of Preco unless you have been exposed to mercury.
  • Precoproporphyrin/Uroporphyrin ratio >2 = mercury toxicity
  • Coproporphyrin elevated compared to % Precoproporhyrin  elevation = another metal present like arsenic or lead
  • Elevated Precoproporhyrin/Uroporphyrin = means mercury is the dominant metal
  • Precoproporhyrin/Coproporphyrin ratio lower than reference range when Coproporphyrin is elevated=either lead or arsenic is present

So science is caught once again proving a connection between autism and heavy metal toxicity, but ever so carefully sidestepping the issue of a direct relationship that might actually assist parents in getting the help they need.

Good thing this is something we can do ourselves.