Daily Kos: The Story of Julian (goodbye to autism)

The Story of Julian (goodbye to autism)

bylanellici

First, the Before picture

Here is my son Julian, at four years old: he couldn’t play with toys; he scowled most of the time; he had explosive, violent rages; had little or no recognition of danger; panicked easily; aggressive; little to no tolerance for changes of any sort; intolerant of light, loud noises, anyone touching him; constantly sick with asthma, ear infections, virus after virus after virus.

Julian would compulsively rub his head all over me and want to put his hands and head under my shirt. He made strange noises a lot of the time, something like the sound dolphins make. His outbursts of rage seemed most of the time to come out of nowhere.

How I found the way out, after the fold. It gets worse before it gets better.

He never played with his little sister, but rather could not tolerate her presence at all, and we couldn’t leave the two of them alone because Julian could unpredictably become aggressive. He never expressed empathy for people or animals. He was not developing any capacity to play by himself. At times he seemed not to be able to think clearly, although he was very intelligent. No pretend play whatsoever. At school he was self-contained; he didn’t explode, but made no friends and did not become actively involved in what was happening. He watched. He never waved hello — he didn’t seem to understand the point of greetings at all.

Our home life was, as you might guess, a disaster. My husband and I were deeply stressed out and my little daughter was routinely very frightened. We pretty much stayed home all the time because crowds made Julian so upset, but home was no place of calm no matter how much we worked at making it that way. On his third birthday I invited three kids and their moms over, people he had spent a lot of time with, and his reaction, when the first child arrived with a smile and a present, was to scream, “I HATE OTHER PEOPLE!” and run upstairs to his room and refuse to come back.

It’s also true that Julian could be extremely interesting to talk to. He invented his own terminologies, he asked questions such as “Who invented language?” while fighting the carseat buckle, he could draw pictures from perspectives that were absolutely his own, unique and strange and lovely.

At that point I was a nearly total believer in mainstream medicine. He got every vaccination on time, he went to every well-visit, I gave him fluoride drops because the pediatrician told me to, round after round of antibiotics because the pediatrician told me to. I followed directions. But I had a child who was a wreck, and sick nearly all the time. When I suggested that something might be wrong, she reassured me that he was fine (a story many many parents of autistic kids can tell). Julian was my first child, my mother died before he was one, my other relatives thought he behaved badly because I was a crummy parent — so I relied on the pediatrician’s observations.

But then Julian fell off a cliff. He spiraled into a meltdown that wouldn’t quit. Hours and hours of crying every day, violent, vicious hissing talk about how he wanted to chop me up into little pieces and put me in the trashcan, how he wanted to kill people, how he wanted to die. He was FOUR……..

via Daily Kos: The Story of Julian (goodbye to autism).

Did Acetaminophen Provoke the Autism Epidemic?

tylenol bottle closeup

http://www.altmedrev.com/publications/14/4/364.pdf

I was invited to view a webinar on a possible connection between Autism and Acetaminophen some months ago.  When I was first told about the next great claim of a definitive cause for Autism, I was skeptical.  I had listened to so many debates on causation and autism.  Honestly, after awhile, the obvious politics involved becomes very tiresome.

I voiced my skepticism, but as this mother proceeded to describe some of the accusations against Acetaminophen (Tylenol), I started to listen more closely.  That is when it hit me.  Unlike all the other causation theories, this could actually explain my child’s Autism and his remarkable improvement through chelation.

You see, my son did not match the typical case histories of othAcetaminophen and Autismer Autistic children.  In fact, I almost failed to pursue biomedical treatments because he did not have a typical story.

My child did not regress.  He never developed normally.  After his diagnosis it became apparent that he was born with Autism.

My child did not have any health problems or frequent ear infections.  In fact the only ear infection and subsequent round of antibiotics he had ever had was at 2.2 years of age, well after his Autism was apparent.

My child was never vaccinated.  I did not receive any vaccines or Rhogam while pregnant.

This was my 5th child.  If his Autism was solely due to my toxic body burden one would expect my previous children to be more affected.

We did not move.  My 3rd child and 4th child were both born and raised in the exact same apartment building as my 5th child.  The environment hadn’t changed.

I really was at a loss and none of the typical biomed explanations quite fit our experience.  Still biomed advocates were proposing using natural safe approaches, like diet modification along with vitamins and other supplements.  These weren’t things that could damage my child, so I really had no reason not to at least give it a go.

We did the GFCF diet and saw improvement.  We did yeast treatments and gut supports, and saw improvement.  He improved on zinc.  He improved on B6.  He improved with almost every intervention we tried.

Then we found AC chelation and he improved to point that most would consider him recovered.  He is in a typical school with typical peers with no supports.  He has friends and has been invited to parties.  In fact, at the end of this year they tested him for the gifted program and determined that he was academically gifted and will start going to an enrichment school one day a week because his typical classroom isn’t quite academically challenging enough.  He is flourishing.  (He does still have some precocious speech and slightly odd gestures but no sign  of Autism.  He was diagnosed with low functioning Autism at age 2.5).

With that kind of drastic improvement with chelation protocol, it was apparent he was metal toxic.  But how?  By now the how didn’t matter much to me.  We left the how question alone to dangle in the wind as we had found the solution, so it didn’t seem important to figure out exactly how the problem started or what the cause could have been.

Never the less the question always dangled, it never totally disappeared from our minds.

Insert the Acetaminophen theory.

You know what was different about my 5th child’s med history?  I was over due and very uncomfortable during my last trimester.  It was so bad that I could not even get two full hours of sleep per night.  I was miserable and exhausted.  My midwife was concerned about whether I would have the energy to mount a proper labor and delivery.  I asked her if there was anything safe I could take while pregnant to help me sleep.  ( I just knew her answer would be no).  She said yes and came back with an Rx for Tylenol 3 with codeine.

I told her I thought it was over kill, “I am uncomfortable but I am not in pain.  I just need some sleep.”

She said that it didn’t cross the placental wall and that although I didn’t need the pain relief, it was the only thing they could give me that was safe for my baby.

I took Tylenol 3 almost every night for 2 weeks.

Quote from article:

Acetaminophen taken during pregnancy may provoke autism present at birth…

Finally, a possible explanation for what we had experienced.  The Tylenol I took may have interfered with his ability to detox environmental toxins as well as impaired his brain function and immune system.  The toxins his body built up could be responsible for the rest.  Is this truth or theory?

At this point it is only theory.  But it is the first theory that had a chance of explaining what we saw, and the research is convincing.  It is solid enough that I would never give Tylenol to another child.  I would recommend all children and pregnant mothers avoid Tylenol and other acetaminophen containing products.  Until more research is done it only makes sense to be cautious.